CHARLOTTE, NC (WBTV) - Carolina Panthers? team captain Ryan Kalil is stepping up to help one of our #MollysKids.
You might remember 3-year-old Finn Muedder from this summer. Mom and dad, Allison and Jon, opened their doors and we went on Facebook live at their home. We met the whole family and showed what it was like to raise a son with a terminal genetic disorder.
Finn lives with Hunters Syndrome. It almost exclusively affects boys. Most children with this disorder don't live to be a teenager. Allison and Jon are determined to find a cure and admit they're in a race against the clock.
They were honest and kind. Watch here >> http://tinyurl.com/FinnMollyFBLive
Ever since that Facebook live, they've been working their butts off fundraising for a trial drug. They call their efforts, "Project Alive". The trial drug will ultimately cost $2.5 million, but the first step they said was to raise $1 million to get the manufacturer to start.
Tonight, they hit that million dollar mark. Actually, they got over it: $1,011,760.
Six months after starting, they're over a million dollars.
Pretty amazing stuff, right there.
Some of this is in part to Ryan Kalil. Just last week he heard about their attempts to get the trial funded and stepped up donating $25,000. His name brought in added attention and an end-of-year surge. Ryan and Finn then met this past weekend.
If things keep going well, Allison says the trial could start in the fall. (It's already been FDA-approved.)
And, might I personally add, one of the greatest things about the Muedders is they say even if the trial isn't funded in time to save Finn and God knows we all hope it could be and does, but even if they can't save him, they say they want to be successful to try and save other little boys.
Power of parents on a mission.