Taylor lives in Charlotte with PURA Syndrome. She’s 1-of-350 individuals worldwide with a known case. Her mother, Amanda Shanks, says it causes intellectual disabilities and motor delays.
Hannah offered to talk with anyone else living with POTS, to help them network and have an ear to listen. I connected her with Abigale, but wanted to post about her here, too, in case anyone else reading this would like to be in touch.
Abigale Smuda competed in Miss Teen United States nine months ago while fighting a rare autoimmune disorder. We’ve been following her journey as one of our amazing #MollysKids since 2016.
Two children of a South Carolina couple live with NKH (Nonketotic Hyperglycinemia), a genetic disorder so rare that only 500 people in the world live with it.
Eric now currently works at a marketing agency in Hickory and still has his love for journalism. He graduated from Appalachian State University in 2018.
Benjamin turned 4-years old last month in Morganton, and is one of nine children. Ben also lives with a rare form of dwarfism called Hypochondroplasia.
Doctors were able to get 90 percent of the tumor off his eye. His mom Lindsay says he was out of the hospital in three days and you’d “never know he had major surgery aside from the incisions.”
Remember Everleigh Rose Simmons? She was the newest one of our #MollysKids a month ago. She was born in September at 25-weeks, weighing a slight 1-lb, 13-ounces.
Catching up on so many amazing new #MollysKids stories... happy to introduce you guys to Bryson Helms, a 5th grader at Balls Creek Elementary in Newton. He lives with Chronic Pancreatitis.
He was in Novant Health Hemby Children’s Hospital for 93 days – June 26th to September 27th – for complications from a defect he was born with: Gastroschisis.
Levine Children’s sent Sofia Copp to interview the UNC Charlotte Men’s Soccer Team. This south Charlotte 11-year-old also met the entire football team.
For five years now, Noah has helped make his classmates more aware of what Dwarfism is, and this year he got more creative by inviting his friend Mason in from Burke County to help the cause.
Those who knew Stephen don’t remember him by his illness. They remember him as a happy, popular kid at Salisbury High School. He won Homecoming King, had friends in every direction, and ended up getting his high school diploma while in the hospital right before he passed.
Levine Children’s Hospital already, right this second, has programs in place for kids fighting cancer that include art and music therapy. All through Sherry.
September 27th: The Riddle family has six kids. Their lives are far from calm. But the fact that one daughter has already beaten cancer and another was diagnosed with Congenital Myasthenia Syndrome makes their lives indescribably crazy.
Dr. Chad Jacobsen, a pediatric oncologist in Charlotte, let Molly Grantham twist his arm enough to go live on Facebook and take your questions, and talk about his world with brain tumors and the children in our area who fight them.
Ka’lon White is 8-years old and battles acute lymphoblastic leukemia (ALL). He has a lot of up-and-down days; his mom says yesterday was one of his best ever.
Though only six years old, Madison and her parents were also able to raise over $15,000 to give towards research through her Relay for Life Team. And last month, Madison hosted a blood drive.
These 30 September #MollysKids stories highlight REAL kids in our community who battle. The stories are meant to be shared and educate, as they have every September since 2013.
Brayson was diagnosed in November of 2017 with Medulloblastoma. A brain tumor. Prior to his diagnosis, this Cleveland County teen was a three-sport athlete.
Angel McCaskill will be at Komen Charlotte’s "Race for the Cure" on October 5th. As a 12-year Survivor, she says she wouldn't miss it. SIGN UP to join her and our team http://tinyurl.com/TeamMolly2019.
We love Emily Cook from Shelby. Emily has KIF1A Associated Neurological Disorder (commonly called KAND). Her mom, Julie, is amazing. Constantly researching and trying to find answers.
Preston Cope of Gaston County will turn 2 this December. Especially important to note, considering this Belmont boy wasn’t supposed to live past his first few days of life.
This Kings Mountain boy was born 17-weeks premature because his mother was reportedly a drug addict, using while pregnant, and didn’t get prenatal care.
This townhome is called The House of Hearts and Hope. It’s 7-miles from Duke Hospital in Durham. It’ll be free to families who stay there. There are three bedrooms – each with unique decorations. The entire home is an ode to Lyndsi’s son, Luke.
We featured this incredible Charlotte woman a couple years ago on her 100th birthday. Julia Teamer is now 102-and-a-half and still going strong. Her friends emailed asking if we knew she was also a breast cancer survivor.
Meet William Beazley, 22-months old and trying to play the ukulele. William is originally from Spartanburg, South Carolina, but his mom is from Shelby, and heard about #MollysKids through several friends still living in our area.
Beginning of Chloe Morris’s College Essay: “Most people do not know this, but I have a secret identity. I do not talk about it much because I do not want to make people jealous. My secret identity helps me miss school to attend meetings on how to change the world.”
Imagine living with the flu, everyday, 24 hours a day, 7 days a week. Those are the kind of symptoms Addison Martinez lives with. This 6-year-old from Harmony, is the newest one of our #MollysKids.
Look at Gavin Bryson. Last time we had an update on him, he was getting Carolina Panthers tickets on Christmas Eve from one of you guys who had kindly donated them to #MollysKids. Now he’s 11 years old and has been off his chemo for a month without any tumor regrowth.
After lots of quiet behind-the-scene coordination – much of it on the shoulders of the generous donor who wanted to keep herself anonymous – it all worked out.
