LINCOLN COUNTY, NC (WBTV) - Please welcome Fletcher Morrison, the newest one of our amazing #MollysKids.
Fletcher is a sweet, spunky 6-year-old who lives in Denver, in Lincoln County. He was diagnosed shortly after birth with a rare genetic disorder called Neurofibromatosis. Since his diagnosis, he has developed a tumor on his spine – which is inoperable – as well as scoliosis.
Good news: For 5 years, his tumor has been stable.
Bad news: On his last scan, the oncologist found fluid in his spine that led to a discovery of chiari malformation, a whole other medical issue. Because of the chiari malformation, Fletcher will have to have brain surgery in May. This new problem has also contributed to making Fletcher’s scoliosis worse. He’s currently being fitted for a back brace.
“Not many people know about Neurofibromatosis,” mom Molly Morrison said. “It’s a genetic nerve tumor disease that, actually, he inherited from me. Fletcher is my world. He has his whole life ahead of him and I want other people to know about this disease. There is currently no cure.”
Molly said all she and her husband David can do at this point is monitor his progress.
Fletcher has two brothers, Julian (11) and Leiland (4). Molly says Fletcher is all boy, who loves to ride motorcycles and just started racing motocross this year. He plays soccer and hopes to play baseball next year.
“Neurofibromatosis Type One is a rare, and tumors can appear on the body at any time,” Molly said. “They are nerve tumors, which affect mobility, but he doesn’t let that stop him.”
We mentioned the tumor on his spine is inoperable – Molly says if it grows and wraps around his spine, it could possibly affect his organs.
“He has MRI’s every 6 months to a year,” she says. “He’s being watched by an oncologist and neurosurgeon, and we feel like he’s in great hands.”
Great attitude. Talk about letting go of control.
Molly says you can find more information at www.ctf.org. Also, she asks, spread the word. May is Neurofibromatosis Awareness Month.
“He’s such a happy little guy and is full of energy,” Molly said. “And he loves the camera. I probably have 500 selfies of him on my phone.”
Welcome to #MollysKids, Fletcher. The picture is fantastic. Update us with your smile anytime.
**Editor’s note: This is about one of #MollysKids, children WBTV Anchor Molly Grantham follows closely on her Facebook page. It was first published there, which is why it’s written in a personal way. For years Molly has followed hundreds of kids with uphill medical battles. Find this story and updates on all #MollysKids here.