Rare liver disease leads Charlotte woman to start LIVING donor process

Rare liver disease leads Charlotte woman to start LIVING donor process
Sally Moore has lived with a life-threatening disease attacking her liver for over a decade. She has kept it in check and friends say, never let the obstacles of illness knock her down. (Credit: Family)

CHARLOTTE, NC (WBTV) - You guys know the usual focus here lands on kids with uphill medical battles. But on this calm Friday night, as we wind down the week, Sally Moore is in my head.

She’s a beautiful Charlotte woman. Loads of her friends have emailed. They want her story shared.

First, the background (which will lead to the now): Sally has lived with a life-threatening disease attacking her liver for over a decade. She has kept it in check and friends say, never let the obstacles of illness knock her down.

Then, in 2017, Sally got pregnant. A little girl. Sally and her husband, Jordan, named their daughter June Harlow.

On Christmas Eve, Sally lost June. Stillborn at 36 weeks.

Since then, Sally has been coping with what those who love her describe as unimaginable grief.

Recently, things took an even more severe turn when Sally realized her liver condition had grown worse. Holding out for a cure is no longer an option, doctors say. Sally needs a liver transplant now.

Here’s where a bit of good news comes in: The University of Pittsburgh Medical Center has developed a new technology that allows for LIVING donor liver transplants.

Four people who know Sally have offered (one being her husband Jordan). The process is now underway for each to begin evaluation, before confirmation. It’s expensive. Friends have raised almost $20,000 to get those going.

Even with insurance, it’s such a new procedure for such a rare autoimmune condition, not everything is covered.

Sally says she's not giving up.

She has a new goal and reason to want to live.

Read what she posted earlier this week:

"I’ve never known how to handle telling myself, much less other people, that I have an autoimmune disease that will lead to death unless I undergo a life-threatening surgery. I have never wanted it to be an identity marker for me... ...Though I will say that in many ways the diagnosis has really helped me make some important decisions. I left jobs I hated, traveled when I was broke, ate all the pasta Italy had to offer for a year and allowed myself to fall REALLY in love and become the obnoxious person that everyone hated because I’d brag on the virtues of my Love to anyone who would listen.”

Sally went on.

“We all know our days are measured but some know more than others and I am thankful I’m one of them for reasons like this. I was reminded of it yet again when we lost little June. I’m not proclaiming to be thankful for this stupid disease or for the loss of our girl, as both are even more awful than you can imagine, but the time has come for me to own the facts and do something about them. I need a new liver so I can travel more, eat even more pasta, fall in love and love others more fiercely than ever - and - I want to get pregnant again. A new liver opens these doors.”

Phew.

Sally and the four donor candidates are heading to UPMC in early February. Lots of love to each of them.

Please, Sally. We want to know how it goes. Please keep us updated.

-Molly

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