Molly's Kids: Only $750,000 to go! - | WBTV Charlotte

Molly's Kids: Only $750,000 to go!

(Photo courtesy family) (Photo courtesy family)
CHARLOTTE, NC (WBTV) -

"Only a cool $750,000 to go!”

THAT was Charlotte mom Allison Muedder’s reaction after hearing the Mark Cuban Foundation just gave her family a big donation. I love it. Because as insane as it sounds – ¾ of a million dollars is a TON of money – her goal has always been a whopping $2.5-million. 

Allison and her husband Jon are trying to fund a clinical trial to possibly save her son, and many others like him. Hearing Mark Cuban (of Shark Tank fame and owner of the Dallas Mavericks) gave them $250k is reason to cheer. 

“We believe this expensive trial can save lots of little boys living with Hunter Syndrome,” said Allison. “It’s going to take us – families – raising every single dollar. We aren’t going to stop.”

They’ve come incredibly far in a short time. (So far, actually, we’re going to talk about it tonight on WBTV News at 11p.)

Last summer, near the start of their campaign to raise $2.5-mill, Allison and Jon invited me into their living room to meet their son Finn. Hunter Syndrome affects 500 boys total in the U.S. Only boys. (Four are #MollysKids. See end of post.) 

There is no cure for Hunter Syndrome. They said they were in a race against the clock.

Fast forward to now -- they have the attention of the FDA. 

If they keep raising, they could get a clinical trial by mid-summer. 

Next up? A fundraiser on June 16th in Weddington. Kid-friendly event from 8am-noon at the Weddington Corners parking lot. Antique cars, food, games, food truck, etc. All are invited.

Can’t wait to write the post that says they’ve done it. I think everyone who knows them has faith they’ll hit their goal.

Congrats, Finn and family, and thank you Mark. These many baby steps are equaling big ones.

**Editor’s note: This is about one of #MollysKids, children WBTV Anchor Molly Grantham follows closely on her Facebook page. It was first published there, which is why it’s written in a personal way. For years Molly has followed hundreds of kids with uphill medical battles. Find this story and updates on all #MollysKids here.**

  • Local NewsMore>>

  • Silver Alert issued for a missing man in Matthews

    Silver Alert issued for a missing man in Matthews

    Saturday, June 23 2018 10:34 AM EDT2018-06-23 14:34:06 GMT
    Matthews Police DepartmentMatthews Police Department

    A Silver Alert has been issued for a missing man in Matthews. Officials say Shaheed Jameed Siddiq who suffers from a cognitive disorder and is in need of his medication may be in the area of Kale Wood Lane.  

    More >>

    A Silver Alert has been issued for a missing man in Matthews. Officials say Shaheed Jameed Siddiq who suffers from a cognitive disorder and is in need of his medication may be in the area of Kale Wood Lane.  

    More >>
  • Man dies days after being seriously injured in shooting near uptown Charlotte

    Man dies days after being seriously injured in shooting near uptown Charlotte

    Saturday, June 23 2018 9:57 AM EDT2018-06-23 13:57:42 GMT

    According to emergency officials, the incident happened in the 1100 block of West 1st Street.

    More >>

    According to emergency officials, the incident happened in the 1100 block of West 1st Street.

    More >>
  • Road work coming to Weaver Road, Patterson Street in Rowan

    Road work coming to Weaver Road, Patterson Street in Rowan

    Saturday, June 23 2018 7:49 AM EDT2018-06-23 11:49:21 GMT
    (WBTV)(WBTV)
    (WBTV)(WBTV)

    Several road work projects will be taking place over the next few weeks in Rowan County, according to NC DOT. 

    More >>

    Several road work projects will be taking place over the next few weeks in Rowan County, according to NC DOT. 

    More >>
Powered by Frankly