Molly's Kids: Why shoving cupcake in his face was a great marker - | WBTV Charlotte

Molly's Kids: Why shoving cupcake in his face was a great marker of progress

(Credit: Family) (Credit: Family)
(Credit: Family) (Credit: Family)
(Credit: Family) (Credit: Family)
CHARLOTTE, NC (WBTV) -

Happy (late) birthday to Nolan Henderson, who celebrated turning one last week with a Cookie Monster-themed pool party.

The real reason for this update isn’t his party, it’s that he was able to – all by himself! – smear a cupcake across his face. That’s a big deal. Nolan lives with a rare genetic disorder (yes, another child in our area with yet another different “rare genetic disorder”, WHEN DOES IT STOP???). It's called Mowat Wilson Syndrome.

It affects muscle movement and development.

For him, smearing a cupcake is a step in the right direction.

Mom Theresa says ever since Nolan’s #MollysKids debut in March, he has been slowly progressing with speech and physical therapy. She says he even went to the HEARTest Yard 5k last month and raised $4,500.

Besides Mowat Wilson Syndrome, Nolan also lives with a congenital heart defect, weakened immune system, labored breathing and some GI issues. The impact of all that added together can be severe – every milestone is precious.

Which is why we love hearing about cupcake in his face.

Next on deck? A trip to the beach. Nolan’s first chance to hear the ocean will be this August.

Please Theresa, let us know if he tries to eat the sand.

:)

-Molly

PS: Original Nolan post HERE

*Editor’s note: This is about one of #MollysKids, children WBTV Anchor Molly Grantham follows closely on her Facebook page. It was first published
there – which is why it’s written in a personal way. For years Molly has followed hundreds of kids with uphill medical battles. Find this story (and updates on all #MollysKids) here.

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