In that post I asked Jamie, Lexi Rae’s mom, to keep us updated. Jamie wrote to say decompression surgery is now scheduled for August 4 at Levine Children’s Hospital.
This is a huge step. ACM is all about trying to fix the symptoms because currently there is no cure.
Keep smiling as you prepare for surgery, Lexi Rae.
**Editor’s note: This is about one of #MollysKids, children WBTV Anchor Molly Grantham follows closely on her Facebook page. It was first published there – which is why it’s written in a personal way. For years Molly has followed hundreds of kids with uphill medical battles. Find this story and updates on all #MollysKids here.**