ALEXANDER COUNTY, NC (WBTV) - Hi, Kyler!
Energy from this 7-year-old in Alexander County is jumping off the photo. Which is a little ironic because for years he was told to keep his energy level down.
Kyler Bebber's mom and dad -- Alisha and Shaun -- found out their son had Hypertrophic Cardiomyopathy in April of 2013. It means he has an enlarged heart. It was found by accident when he was getting a chest x-ray done for something unrelated.
"The worst day of my life," wrote Alisha in an email she sent me a couple weeks ago. "I don't want to remember that day but there's no way I'll ever forget it."
The family lives in Taylorsville. Kyler is 2nd-grader at @Ellendale Elementary. He has a younger sister named Adalyn who he adores. (I'll put a cute picture of them below in comments.)
Ten months after first getting his diagnosis, Alisha received a call from the school saying Kyler had coded. He had been too active and his heart couldn't take it. Kyler was airlifted to @Levine Children's Hospital. He underwent surgery and had a pacemaker/defibrillator put in.
Four months later he coded again, this time at church. He was airlifted again.
That's when his family started the process to get him on the transplant list.
Six months later, he was on the list and waiting when he passed out at school. His device saved his life. But afterwards, his doctors said he needed to be moved up to the top of the transplant list.
He was moved up there. Still, he waited.
This past September, seven months after being moved "to the top of the list", Kyler coded again at school. Again, the device saved his life.
One week later -- the week of October 10th, 2015 -- Alisha says their family received the call they had been so desperately waiting for: The "perfect heart" was waiting for Kyler.
A day later he was in surgery.
This morning, three-and-a-half weeks later, he continues to do awesome.
"He amazes us all," Alisha said. "He is a blessing to our family, and our community."
Alisha reached out because, she says, of awareness.
"People don't realize how devastating heart disease can be to a child," she said. "My baby boy is proof. He has touched so many of us in Taylorsville. Would you mind making him one of your #MollysKids? and sharing his story with the world?"
Absolutely not, Alisha. Done. It's really YOU we want to thank for sharing your son with us.